Neuromuscular disorders (including Muscular Dystrophy)

Children and young people with with Neuromuscular Disorders (including Muscular Dystrophy)

Introduction 

The muscular dystrophies (MD) are a group of inherited genetic conditions that gradually cause the muscles to weaken, leading to an increasing level of disability.

MD is a progressive condition, which means it gets worse over time. It often begins by affecting a particular group of muscles, before affecting the muscles more widely.

Some types of MD eventually affect the heart or the muscles used for breathing, at which point the condition becomes life-threatening.

There's no cure for MD, but treatment can help to manage many of the symptoms.

If your child is under 5 years, please contact your Health Visitor or your GP in the first instance.

If your child is over 5 years, please contact your GP. If your child is in special school your community nursing team will be able to provide information, advice and guidance. Please use this link for a parent leaflet for details. If your child is in a mainstream school, please contact your SENCO (Special Education Needs Co-ordinator) in the first instance.

If your child has MD, they may access physiotherapy to support their mobility. Please visit bromleyhealthcare.org.uk/childrens-physio to find out more.

Information, help and guidance

NHS Bromley CCG, Global House, 10 Station Approach, Bromley, BR2 7EH

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